Please use this identifier to cite or link to this item:
https://hdl.handle.net/2440/136587
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dc.contributor.author | Smith, N.L. | - |
dc.contributor.author | Smith, M.G. | - |
dc.contributor.author | Gibson, N. | - |
dc.contributor.author | Imms, C. | - |
dc.contributor.author | Thornton, A.L. | - |
dc.contributor.author | Harvey, A.R. | - |
dc.date.issued | 2023 | - |
dc.identifier.citation | Developmental Medicine and Child Neurology, 2023; 65(3):318-328 | - |
dc.identifier.issn | 0012-1622 | - |
dc.identifier.issn | 1469-8749 | - |
dc.identifier.uri | https://hdl.handle.net/2440/136587 | - |
dc.description | First published: 16 September 2022 | - |
dc.description.abstract | Aim: To systematically identify and evaluate the measurement properties of patient-reported outcome measures (PROMs) and observer-reported outcome measures (parent proxy report) of pain coping tools that have been used with children and young adults (aged 0–24 years) with a neurodevelopmental disability. Method: A two-stage search using MEDLINE, Embase, CINAHL, Web of Science, and PsycInfo was conducted. Search 1 in August 2021 identified pain coping tools used in neurodevelopmental disability and search 2 in September 2021 located additional studies evaluating the measurement properties of these tools. Methodological quality was assessed using the COnsensus-based Standards for the Selection of Health Measurement INstruments (COSMIN) guidelines (PROSPERO protocol registration no. CRD42021273031). Results: Sixteen studies identified seven pain coping tools, all PROMs and observer-reported outcome measures (parent proxy report) versions. The measurement properties of the seven tools were appraised in 44 studies. No tool had high-quality evidence for any measurement property or evidence for all nine measurement properties as outlined by COSMIN. Only one tool had content validity for individuals with neurodevelopmental disability: the Cerebral Palsy Quality of Life tool. Interpretation: Pain coping assessment tools with self-report and parent proxy versions are available; however, measurement invariance has not been tested in young adults with a neurodevelopmental disability. This is an area for future research. | - |
dc.description.statementofresponsibility | Nadine L. Smith, Meredith G. Smith, Noula Gibson, Christine Imms, Ashleigh l. Thornton, Adrienne R. Harvey | - |
dc.language.iso | en | - |
dc.publisher | Wiley | - |
dc.rights | © 2022 The Authors. Developmental Medicine & Child Neurology published by John Wiley & Sons Ltd on behalf of Mac Keith Press. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made. | - |
dc.source.uri | http://dx.doi.org/10.1111/dmcn.15410 | - |
dc.subject | Humans | - |
dc.subject | Cerebral Palsy | - |
dc.subject | Pain | - |
dc.subject | Reproducibility of Results | - |
dc.subject | Adaptation, Psychological | - |
dc.subject | Psychometrics | - |
dc.subject | Quality of Life | - |
dc.subject | Child | - |
dc.subject | Young Adult | - |
dc.subject | Self Report | - |
dc.subject | Patient Reported Outcome Measures | - |
dc.title | Pain coping tools for children and young adults with a neurodevelopmental disability: A systematic review of measurement properties | - |
dc.type | Journal article | - |
dc.identifier.doi | 10.1111/dmcn.15410 | - |
dc.relation.grant | http://purl.org/au-research/grants/nhmrc/1171758 | - |
pubs.publication-status | Published | - |
dc.identifier.orcid | Smith, M.G. [0000-0002-8272-1535] | - |
Appears in Collections: | Paediatrics publications |
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hdl_136587.pdf | Published version | 442.53 kB | Adobe PDF | View/Open |
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