Please use this identifier to cite or link to this item:
https://hdl.handle.net/2440/141338
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Type: | Journal article |
Title: | Psychological Care for People with Inflammatory Bowel Diseases: Exploring Consumers' Perspectives to Inform Future Service Co-design |
Author: | Lores, T. Mikocka-Walus, A. Andrews, J.M. Evans, S. Lynch, K.D. Chur-Hansen, A. |
Citation: | Digestive Diseases and Sciences, 2024; 69(6):1979-1989 |
Publisher: | Springer |
Issue Date: | 2024 |
ISSN: | 0163-2116 0163-2116 |
Statement of Responsibility: | Taryn Lores, Antonina Mikocka-Walus, Jane M. Andrews, Subhadra Evans, Kate D. Lynch, Anna Chur-Hansen |
Abstract: | There is a need to improve psychological care for people with Inflammatory Bowel Diseases (IBD), noting the high psychosocial burden of disease. This study qualitatively explored the views of people living with IBD to help inform future co-design of services that better meet the psychological needs of consumers. Adults with IBD were recruited to attend virtual focus groups to discuss what they want most in an IBD-specific psychological service. The discussions were recorded and transcribed, and data were analyzed using conventional qualitative content analysis. Draft results were summarized midway and reviewed by remaining focus groups and a final expert consumer. A quantitative dataset was created of comment frequencies. Thirty-one participants took part in the study: 10 focus groups were held with an average of three participants per group. The analysis identified 254 codes, 38 sub-categories and six categories. Five main categories were identified for an IBD-specific psychological service: People-Centered Healthcare (commented on by 90% of participants), Education and Preparation (83%), Social Connection (83%), Psychological Input (93%), and Accessible Services (97%). Results were summarized in a set of proposed clinical guidelines. The findings of this study identify important insights from people living with IBD regarding priorities for psychological services. IBD services should focus on improving education, addressing social connection, and integrating psychological input, as well as becoming more people-centered and accessible. It is hoped that IBD services consult the proposed clinical guidelines to inform co-designed service improvements. |
Keywords: | Co-design Inflammatory Bowel Diseases Psychological factors |
Rights: | © The Author(s) 2024. Open Access This article is licensed under a Creative Commons Attribution- NonCommercial 4.0 International License, which permits any non-commercial use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by-nc/4.0/. |
DOI: | 10.1007/s10620-024-08377-x |
Published version: | http://dx.doi.org/10.1007/s10620-024-08377-x |
Appears in Collections: | Aurora submissions |
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