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https://hdl.handle.net/2440/119495
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Type: | Journal article |
Title: | Women's experiences of polycystic ovary syndrome diagnosis |
Author: | Gibson-Helm, M.E. Lucas, I.M. Boyle, J.A. Teede, H.J. |
Citation: | Family Practice, 2014; 31(5):545-549 |
Publisher: | Oxford University Press |
Issue Date: | 2014 |
ISSN: | 0263-2136 1460-2229 |
Statement of Responsibility: | Melanie E Gibson-Helm, Isabelle M Lucas, Jacqueline A Boyle and Helena J Teede |
Abstract: | Background: Polycystic ovary syndrome (PCOS) is a common and complex endocrine condition affecting women across the lifespan. Diagnosis experience may impact on physical and emotional well-being and engagement with evidence-based management and treatment. Objective: To explore the perceived experience of PCOS diagnosis, prior to development of an evidence-based guideline for PCOS assessment and management. Methods: Cross-sectional study, involving devised questionnaires completed by a national, community-based sample of 210 women with a previous medical diagnosis of PCOS, aged 18-45 years, in Australia. Main outcome measures included time to diagnosis, number of health professionals seen and information provision. Results: Mean age (± standard deviation) was 31 (±5.8) years and median body mass index (interquartile range) was 30 (12) kg/m². For 24% of women, PCOS diagnosis took >2 years and 39% saw three or more health professionals before diagnosis was made. The majority (60%) reported they were not given or referred to information sources at time of diagnosis, 20% reported receiving information and 20% were given information but felt it was inadequate. Of those who reported provision of information at diagnosis, 62% felt dissatisfied with or indifferent to information provided about PCOS, 79% reported being provided with information about lifestyle management, 89% reported being provided with information about medical therapy, 83% about long-term complications and 95% about potential infertility. Conclusions: PCOS diagnosis experience can be lengthy, involve many health professionals and leave unmet information needs. The current findings inform the need for evidence-based PCOS resources for women and health professionals. |
Keywords: | Diagnosis; diagnosis experience; evidence-based guideline; polycystic ovary syndrome |
Rights: | © The Author 2014. Published by Oxford University Press. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com. |
DOI: | 10.1093/fampra/cmu028 |
Grant ID: | http://purl.org/au-research/grants/nhmrc/1042516 http://purl.org/au-research/grants/nhmrc/1016755 |
Published version: | http://dx.doi.org/10.1093/fampra/cmu028 |
Appears in Collections: | Aurora harvest 4 Medicine publications |
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